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underwear pubic Supra

06-14-2010, 03:04 PM

gjnl

Senior Member Join Date   Jun 2005   Location   USA   Posts   9,478  

Supra Pubic and Underwear

I have searched these forums, done a lot of Googling, and read a lot about supra pubic tubes, but as much as I have searched, I haven't read anything definitive on how men deal with underwear and the SP tube. The tube exits about midline, just above the pubic bone. What do you do with the tube? Do you run the tube down the leg of your underpants? Do you thread the tube through the underwear placket? Do you alter the underwear to accommodate the tube, if so how? Are there sources for underwear that is made to be worn with an SP tube. (I've seen some, but what I have seen have the bag worn on the thigh and others are made for men with mobility, not wheelchair users).

I have read about anchoring the tube and have checked out some of the websites provided by the SCI nurse. Where is the best place to use the adhesive backed anchors, on the belly close to the exit spot of the tube or somewhere else? I will be wearing a 1000 cc leg bag on my calf, in a Urocare leg bag holder, should I use a leg strap to keep the extension tube to the bag in place?

My urologist is allowing me a trial of the SP tube and I want to get this right to try to avoid more invasive procedures. After 29 years, I have done my share of reinventing the wheel, and hope that those of you who have SP experiences can be a great resource.

I am am a 65 year old male, 29 year post injury C-6/7, who started SCI life spontaneous using an external condom and leg bag. 12 years ago, I went to CIC after having a Urolume stent implanted, that did not accomplish its goal of holding the sphincter open. When I started experiencing lower volumes, I tried several attempts at Botox injections. There were not terribly effective. I am experiencing low volumes (cathing at 100 - 200 cc), which means too many caths per day (and autonomia). Also experiencing frequent UTIs. Have had cystoscopy with retrograde pyleogram, urodymanics, ultra sounds all with the last 6 months. The current plan is to take baby steps to new bladder management techniques, trial of Supra Pubic for 4 months, if I don't tolerate it or have frequent UTIs, my neuro-urologist suggests an ileovesicostomy (ileal chimney leaving the bladder in place). During the urodynamics study, the urologist found neurogenic bladder characterized by low pressure filling, but very high urethral pressure despite the UorLume, and detrusor sphincter dyssynergia involving the internal and external sphincters. Autonomia at relatively low bladder pressures. These findings baffled him somewhat because this isn't typical of the neurogenic bladder. Fortunately, this condition protects the kidneys because I don't have back pressure through the ureters. He consulted with several neuro-urologist at major rehab centers and the consensus was the ileovesicostomy as the ultimate solution. I argued for a less aggressive approach and he agreed to have me try the SP before going to a big surgery and recovery.

Thanks for your help.
gjnl

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06-14-2010, 03:33 PM

LindaT

Senior Member Join Date   Jan 2010   Posts   8,075  

Hi gjnl, There is a thread somewhere about people wearing underwear. It had some practical advice and some funny things. Maybe someone can find it.
My husband has had a suprapubic since Jan 09 and so far only one UTI that was treated with antibiotics.
He does not wear underwear, but some people do.
Good luck!

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06-14-2010, 06:33 PM

MSWIFE1

Senior Member Join Date   Sep 2007   Location   Fithian, IL   Posts   1,967  

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